At the Autism Show in June 2021, we heard from speakers around the world about all matters relating to autism, from education to employment and from wellbeing to managing meltdowns. As high proportions of people with autism can be vulnerable to anxiety and depression, maintaining your wellbeing can be a challenge.
Peter Vermuelen, autism consultant and lecturer asked whether happiness is a mission for autistic people – or is it mission impossible? “You need to redefine this as becoming autistically happy,” advised Peter. “Avoid forcing a person with autism into neurotypical concepts of happiness.”
Obviously, autistic people are in fact human and have the same Maslow’s hierarchy of needs as anyone (although you should probably also add wifi and a full battery to the physiological needs). Autistic people have a higher risk for mental health issues – anxiety, depression and trauma are almost co-morbid conditions. The lifetime prevalence for people with autism is 10-65% for anxiety (compared to 15-20% of neurotypical people) and 10-55% for depression (10-30% neurotypical). Autistic people also have a lower quality of life in general, with respect to living arrangements, work/education, social relationships and future perspectives, even when compared to other neurodiverse diagnosed people, such as those with ADHD. This quality of life deficit cuts across all IQ ranges – the ‘severity’ of autism makes no difference to mental health issues.
According to Deci and Ryan’s self-determination theory, we all want to be our own person, to have autonomy, competence and relatedness. For Peter, studies show that the happiest people are the most successful (not the other way round). Even in neurotypical people, negative feelings can cause an overfocus on detail and rigidity in thinking. Positive feelings increase cognitive functioning, flexibility and adaptability.
There are two aspects of happiness:
- A pleasant life e.g. joy, pleasure, absence of pain, safety, activities you like (volatile elements)
- A meaningful life e.g. purpose in life, personal growth, serving others, life satisfaction (more stable elements)
Peter believes that happiness is within reach of all autistic people but interventions should be autism friendly, individualised and involve the person themselves. Peter’s programme, the H.A.P.P.Y project involves increasing baseline happiness and also adding more of the hedonic, or transitory, pleasure. This includes:
- Accepting and loving yourself
- Good feeling toolbox, such as a box full of happy things to take to school or work
- Flow activities, those where we lose track of time and are distracted from our unhappiness. Special interests are a great fit here!
- Physical exercise, as exercise helps with emotional regulation
- Problem focused coping strategies. If we make life too easy, this creates learned helplessness. We need to build resilience in small steps to face problems
- Emotion focused coping strategies e.g. mindfulness, relaxation, visualisation in an autism friendly way
- Positive thinking. If you explore the ‘what ifs’ ahead of time, this can take away the unpredictability of what you are worried about
- Gratitude. Make other people happy by writing letters or paying compliments
- Kindness. Using your autistic strengths to help other people aids connectedness
- Personal projects. Goals give life meaning, so try learning something new (although don’t make happiness your goal)
Peter concluded with my favourite quote of the day: “You can’t stop the waves but you can learn to surf” (Jon Kabat-Zinn).
Sensory processing and autism
Your ability to interact with the world through your senses can have a huge impact on your physical and mental wellbeing. Lorraine Young, an autistic adult and Sensooli Community Manager, highlighted Sensory Processing Disorder (SPD), which is common in the autism community. SPD can lead someone to be under or over sensitive to stimulus such as sounds, smells and textures, causing either sensory seeking or sensory avoidant behaviours.
I always thought we had 5 senses, but apparently there are 8: sight, sound, smell, touch, hearing and also vestibular (balance), proprioception (knowing where are bodies are) and interoception (not knowing if we are hungry, thirsty or need the loo).
Overall, around 1 in 20 people have sensory issues, while 1 in 6 may be significantly affected. Not all people with autism have SPD however, and vice versa. Helpful sensory hacks can use sensory seeking to counteract avoidance, for example using a favourite smell, such as hand cream to counteract a disliked smell. The Tudors clearly had a point with their handy pomanders.
Lorraine recommended using Sensooli to work out your own sensory profile. Sensooli provides sensory products and also support networks. “Sensooli is not a diagnostic tool, it is a discovery tool,” advised Lorraine.
Autism and disability in society
Thomas Henley, an autistic YouTuber and creater of the Thoughty Auti podcast, described how he can both love and hate being autistic. As only 22% of adults with autism are in work and 40% live with depression, social isolation can be a real problem.
Autistic people may experience challenges in society due to the ‘medical model of disability’, which assumes that people are disabled by their individual impairments or differences themselves. This model implies that the autistic brain should be treated to make it more neurotypical in order to achieve a better quality of life. Neurotypical life is the ideal in this model.
In contrast, the ‘social model of disability’ states that people are disabled by the interaction of their differences with external factors or society. In this model, social structures, attitudes and provisions should be adapted to fit the individual better. With improved support and integration, a high quality of life becomes possible without needing treatment. For Thomas, autism is a ‘differability’. “It has its upsides and downsides, just like being neurotypical,” he explained. “There is no ‘right’ way of being! Rather than treat autism, we should instead treat the conditions that co-occur with autism, such as mental health conditions.”
In mental health support there are very few specialists in autism and they tend to be available only privately at a high cost. There are not many targeted services available through the NHS and research into autism and mental health is also not well funded. “Nor is there much research into the upsides of autism!” pointed out Thomas. He remarked that there is an increasing media presence for autism and autistic characters, but many stereotypes still persist.
“Ironically, autistic actors are not playing autistic characters on TV because they often don’t fit the stereotypes!” said Thomas. Seeing truer representations of autism on screen would help to raise awareness and understanding, creating a society that is better able to adapt to the ‘differabilities’ of people with autism and (hopefully) improve their wellbeing.


